Join us to raise awareness for MPS III A, also known as Sanfilippo Syndrome, and support families affected by this condition, which is often referred to as childhood Alzheimer's. Together, we can make a difference for those with special needs and work towards a Cure Rea.
In April 2025, my world changed forever when I learned that my beautiful daughter, Rea, was diagnosed with Sanfilippo Syndrome (MPS IIIA)—a rare, progressive genetic condition often referred to as “childhood Alzheimer's.” At just six years old, Rea was full of laughter, hugs, and dreams of princesses and adventures. She still is. But now,
In April 2025, my world changed forever when I learned that my beautiful daughter, Rea, was diagnosed with Sanfilippo Syndrome (MPS IIIA)—a rare, progressive genetic condition often referred to as “childhood Alzheimer's.” At just six years old, Rea was full of laughter, hugs, and dreams of princesses and adventures. She still is. But now, we face each day knowing that time is precious and every moment matters. Sanfilippo Syndrome slowly takes away abilities that children once had—like walking, talking, and playing. It’s a journey no parent ever expects to walk, and one I wouldn’t wish on anyone. From that day forward, I made a promise to Rea and to myself: to fight big for someone small. Our mission is twofold: Create beautiful memories with Rea while she can still experience the magic of childhood and fight for a cure—raising awareness for MPS IIIA, funding research, and connecting with other families so no one feels alone in this battle. This website is a place to share Rea’s journey, celebrate her milestones, and shine a light on Sanfilippo Syndrome. It’s also a call to action—for friends, family, and strangers alike—to join us in advocating for these special needs children and supporting the research that gives us hope. Rea may be small, but her spirit is mighty. With your love and support, we can make every day count while fighting for a brighter tomorrow and a cure for Rea.
Your support helps us make each one count for Rea and families dealing with childhood Alzheimer's, including those affected by MPS III A and Sanfilippo Syndrome. Together, we can work towards a future where we can Cure Rea and support all special needs families like ours.
