Support for Sanfilippo Awareness
Join us to raise awareness for MPSIII A and support families.
Cure Rea: Our Journey
Our Story
In April 2025, my world changed forever when I learned that my beautiful daughter, Rea, was diagnosed with Sanfilippo Syndrome (MPS IIIA)—a rare, progressive genetic condition often described as “childhood Alzheimer’s.”
At just six years old, Rea was full of laughter, hugs, and dreams of princesses and adventures. She still is. But now, we
In April 2025, my world changed forever when I learned that my beautiful daughter, Rea, was diagnosed with Sanfilippo Syndrome (MPS IIIA)—a rare, progressive genetic condition often described as “childhood Alzheimer’s.”
At just six years old, Rea was full of laughter, hugs, and dreams of princesses and adventures. She still is. But now, we face each day knowing that time is precious and every moment matters. Sanfilippo slowly takes away abilities that children once had—like walking, talking, and playing. It’s a journey no parent ever expects to walk, and one I wouldn’t wish on anyone.
From that day forward, I made a promise to Rea and to myself: to fight big for someone small.
Our mission is twofold:
- Create beautiful memories with Rea while she can still experience the magic of childhood.
- Fight for a cure—raising awareness, funding research, and connecting with other families so no one feels alone in this battle.
This website is a place to share Rea’s journey, celebrate her milestones, and shine a light on Sanfilippo Syndrome. It’s also a call to action—for friends, family, and strangers alike—to join us in advocating for these children and supporting the research that gives us hope.
Rea may be small, but her spirit is mighty.
With your love and support, we can make every day count while fighting for a brighter tomorrow.
